to lack of space on the Message Board Forum, some of the older messages
have been archived here:
Messages prior to September 2004
2004 - May 2005
2006 - December 2006
2006 - November 2006
2004 - May 2006
2007 - February 2007
2007 - April 2007
for the inconvenience.
P, 41, USA. Jun 8, 05 - 9:34 PM
all. I was just wondering if anyone else has been diagnosed with both
PDS & Keratoconus. I have been aware of the PDS since 1983 and was
just recently diagnosed with Keratoconus. I know they may not be related
in anyway, just thought it was odd to have both. Thanks
38, USA. Jun 8, 05 - 10:26 PM
was recently diagnosed with PDA, it was an accident that I even found
this out. I had gotten something in my eye and had made an appointment
with the opthomoligist he in turn discovered that I had PDA. I am
to return to him in a few weeks for a series of tests. I had never
heard of this syndrome before. I have did many searches and everything
was greek to me with all of the medical terms they used. I am so glad
I found this site. Reading all the postings it has made me realize
the symptoms people have mentioned here are symptoms I have been having
for a while I just thought it was from my lasik surgery I had 5 years
ago. The light sensitivity, lighting in stores, driving at night,
pain in the eye I cannot go out into the daylight either cloudy or
sunny without my sunglasses on. People always ask me why I am wearing
sunglasses when the sun is not out. I always told them I was very
sensitive to the light because of the lasik surgery I had. Thanks
for the info. M
35, England. Apr 28, 05 - 6:50 PM
just found out that I have PDS, and as much as the experts tell you
not to worry, you can't help it can you? I mean, glaucoma is a one
of those things that you think is going to wreck your life. And are
they serious when they say there is only a 1 in 10 chance of me getting
it? What were my chances before PDS? So I came home, went onto google
and entered the first site listed. Thankyou Tracy, and all of you
who have posted, for putting my mind at rest. I think this site is
going to be a big help to me, so if I can think of anything relevant,
I will post it.
36, UK. Jun 22nd, 2005 - 1:57 PM
have got PDS too. However I have a history of eye problems since
I got trauma to my eyes after an explosion in Kosovo. I have had
Bilateral Anterior Uveitis and Bilateral Iridocyclitis, I also had
High Ocular Pressure. Generally I am of Good Health, so am wondering
if PDS could be linked to the Previous Trauma. Can anyone help me.
and new member of the "club"
Jansen, 34, USA. Jul 17, 05 - 4:15 AM
anyone know where I can find some pictures online showing the differences
between normal eyes and eyes with PDS? Is there anything that can
be seen with the "naked eye", using a mirror, for example? What is
the long term effects of PDS? Will all the coloration eventually flake
away? what is left behind? Will my sensitivity to light get worse?
I guess I may have to wait for the follow-up exam. I was just diagnosed
this afternoon, so there are about a million questions running through
my head. Thanks for this site! The first few I found were SO dry and
difficult to read. This was much better, and I will continue reading
around on it. --Joe Jansen
Matters, 47, USA. Jul 21, 05 - 7:06 PM
my annual eye exam this morning I was told about this syndrome being
present in my eyes (particularly the right eye) and have now been
referred to see an opthalmologist so that the pressures can be monitored.
I have worn contact lenses for 30 years, although now wear only glasses.
I have been short-sighted since I was 9. The optometrist told me there
was nothing to worry about too much, but that she wanted me to see
an opthalmologist who would be able to monitor the pressure every
6 months and keep an eye on things. So I am trying not to worry about
it for the time being. My appointment is on August 30, and I'll let
you know the outcome. Thanks for this website, you certainly made
it a lot clearer than the other ones I was looking at which were far
too medical linguistically.
Whittaker, 55, England. Aug 8, 05 - 12:06 AM
BEING DIAGNOSED WITH PIGMENT DISPERSION SYNDROME AT THE START OF THE
YEAR I HAVE BEEN TO THE EYE HOSPITAL TWICE, UNTIL THEN I HAD NEVER
HEARD OF PDS BUT WAS TOLD IT CAN BE THE ONSET OF GLUACOMA WHICH REALLY
WORRIED ME, SINCE THEN I HAVE READ QUITE A BIT ABOUT IT,SOME SITES
DESCRIBE IT IN MEDICAL TERMS AND THE LENTGH OF THE WORDS ALONE ARE
ENOUGH TO FRIGHTEN ANYONE. I HAVE FOUND THIS SITE MOST USEFUL AS I
CAN READ WHAT OTHER PEOPLE WITH PDS THINK AS WELL, UP TO NOW I HAVE
NOT GOT DROPS OR HAD ANY TREATMENT, I GO BACK AGAIN IN OCTOBER FOR
PRESSURE TESTS AND ANOTHER FIELD TEST. SINCE IV BEEN TO THE HOSPITAL
HOWEVER I HAVE SUDDENLY DEVOLOPED A VERY WATERY EYE, IN FACT IT IS
STREAMING ALL THE TIME, CAN ANYO9NE TELL ME IF THEY HAVE THIS AS WELL?
I WILL POST THE RESULTS OF MY NEXT VISIT TO THE HOSPITAL IN OCTOBER.
thoughts on Krukenberg Spindles
Apr 21, 05 - 6:40 PM
applaud this website! Good Job. I too was diagnosed with Krukenberg
Spindles about 6 years ago. It is truly amazing how many doctors don't
look for it. I worked for an ophthalmologist for 5 years. During my
exams he never mentioned anything unusual. It wasn't until I changed
jobs that my condition was caught. I can not stress enough the importance
of getting your eyes checked EVERY six months. These checks should
include a dilation and visual field test. Every year you should be
getting an additional exam called a gonioscopy. The damage caused
by PDS is not from the free floating pigment. It is caused when the
pigment clogs up the filter in your inner eye and causes your pressure
to spike. Watch your pressures, take your meds and get checked. If
you let it go and your pressure spikes, damage to your retina is irreversable!!
S, 34, USA. May 29th, 2005 - 4:20 AM
a side note . . . having Krukenberg Spindles does NOT necessarily
mean you will have glaucoma, but most certainly you should be checked
on a regular basis. Gonioscopy should be done to look at the "angle,"
or the drain referred to. The pigment can cause the "drain" to clog
up, just like leaves in a storm drain, causing the pressure to spike
and cause, yes, irreversible damage. HOWEVER, I've seen many patients
with a KS and normal pressures and no glaucoma.
32, UK. Aug 8th, 2005 - 2:46 PM
was diognosed with PDS in December. It was picked up by my optician
after a visual field test. I was refered to a consultant, who
diognosed the PDS. My eye pressure is normal at the moment. The
consultant simply stated that all I need to do at this stage is
get my eye pressure checked every year, and when it goes above
21 I should go back to him. I actually now have an eye test done
at the opticians every 4 months to get my pressure checked, but
people on this site have mentioned other tests. What are these
tests and how do I ensure I get them done? Who does them? Do I
need to go back to my GP and ask about these tests? My GP does
not seem to know anything about the condition. Any info would
be brilliant. Also Lutein supplements - what are these?
S, 34, USA. Aug 9th, 2005 - 5:05 AM
GP most likely won't know about Krukenberg Spindle nor will (s)he
have the necessary equipment to perform the additional tests. As
I previously stated, you should have a test called gonioscopy done
to make sure the angle (or drainage point) of the eye is open, or
patent. If pressure readings are high, your doctor should also peroform
pachymetry, which is an ultrasound to determine the thickness of
the cornea, since the measured pressure is a correlation of the
rigidity and thickness of the cornea. If the optic nerve looks suspicious
(your Dr will know what that means), they should also take baseline
optic disk photographs. If your doctor isn't familiar with these
tests, time to get a new doc.
32, UK. Aug 9th, 2005 - 9:20 AM
the UK does the treatment differ from one NHS Trust to another?
No one has offered me any of these tests. How do I ensure I am
put forward for these tests? Is it by referral by my GP? Do I
need to go back to my GP, and ask to be refered to the consultant?
Do I then need to ask the consultant to arrange for these tests
to be carried out? The consultant did state he did not want to
see me until my eye pressure had increased. Can my GP arrange
for these tests to be carried out without seeing the consultant?
S, 34, USA. Aug 9th, 2005 - 8:17 PM
good eye doctor will be familiar with gonioscopy as well as be able
to perform it. Same holds true of pachymetry. If pressures are high
or the optic nerves look suspicious, the doc may also perform threshold
visual fields, GDx (or other retinal nerve fiber layer analysis),
etc. If everything else looks good the doc may decide to just wait
and recheck pressure periodically. The presence (or absence) of
a Krukenberg Spindle is just a small part of a much larger picture.
Don't loose sight of the forest for one tree.
Diagnosed Loved One
37, USA. Aug 25, 05 - 9:11 AM
diagnosis of my boyfriend, August 24'05. Initial acute symptoms, blurred
vision right eye. Within 3 hours light sensitivity and dialated pupil,
fixed. Low myopic and otherwise healthy male. Normal iop's in past.
Last eye exam 1.5 yrs ago. Slight decrease in distance vision but
otherwise stable. Professional auto tech requiring laborious work
efforts including heavy lifting, frequent ups and downs along with
12 hour shifts. Left eye normal with 17 IOP. Right eye elevated to
54 upon first evaluation. Reduced to 47 in 30 minutes of being dropped.
(eye drops) Sent from OD to yet another wonderful MD who diagnosed
"textbook" case of PDS. IOP returned to normal upon drops within 3
hours. Pressures managed at present with topical drops. Laser surgery,
peripheral iridotomy to reduce iris bowing scheduled in 1 week. Alternate
procedure available combined with continued medical tx and eye health
check ups on increased basis if first procedure unsuccessful. MD promises
no gtd's with PI procedure. Promoted as minimally successful in most
rather than greatly successful in many. Left eye is only a suspect
and will be monitored closely for possible symptoms. Appreciating
the quality of medical professionals who graciously and promptly treated
his alarming symptoms. I hesistate to guess what his possible path
may have been pressures check had been overlooked. He was originally
advised to go to the ER where I am not sure the treatment would have
been as specialized for such occular events as well as precious lost
hours. This is not to berate the skills of ER Dr's. In this situation
however, without pressure checks his symptoms could have suggested
alternate ocular situations thus possibly skirting the appropriate
and vital pressure treatment necessary. As an optician for a local
OD my experience with this type of ocular sydrome is limited obviously
well beyond my knowledge level. The education from his Dr's was priceless
as well as termed in ways we could understand. Thanking my God for
wonderful professionals who saved the day for my beloved! Susan